Petition of the DIG PKU for the establishment of specialized medical outpatient clinics also for adults with rare metabolic disorders rejected
Adults with inborn errors of metabolism continue to have no legal claim to specialist medical care – § 116 b paragraph 2 of SGB V remains unchanged. The ASIM will continue to remain politically active in order to repeal this unfounded and absurd restriction in §116.
Press Release of the DIG PKU concerning TSVG
In a query addressed to politicians, the DIG PKU demands the warranty of an adequate care for patients with inborn errors of metabolism