ASIM issues statement to BMG (German Federal Department of Health) – ASIM supports DIG PKU’s initiative to alter §116 b SGB V: term „children“ must be changed to „patients“
SGB V § 116b addresses the outpatient health care by medically specialized consultants.
No. 2 specifies rare diseases and conditions with correspondingly few numbers of cases that form part of this paragraph.
j) Medical specialist care for children with inborn errors of metabolism
In conjunction with other registered medical associations such as the APS, the ASIM claims a modification of this paragraph. Inborn errors of metabolism do subsist for a lifetime. Especially to adults suffering from these diseases no adequate medical treatment is rendered in Germany. The limitation to children needs to be abolished in this paragraph!